We’re a small but dedicated not-for-profit charity, determined to raise money for research, promote organ donation and use our funds to donate defibrillators to the local community and schools.
Since 2001, we’ve donated over £100,000 to research, promoted organ donation and bought 16 defibrillators for the community.
Research, organ donation and defibrillators are the 3 ways that we provide lasting change for people who have Complex Congenital Heart Defects.
With our supporters and partners, we will continue to change lives for the better.
The Charlie Ramsey Research Fund was set up following the birth of our daughter – Charlie Grace Ramsey.
Charlie was born in 2001 with Complex Congenital Heart Defects. The condition that Charlie was born with currently has no medical cure. Charlie is one of 600 children born each year diagnosed with only half a functioning heart; sadly, some of the children do not survive the surgery offered. Without research even surgery was not an option for these children, 20 years ago babies born with the condition received palliative care at home. It is for this reason that the charity was set up, to raise money for research. In the hope that one day a cure can be found for all babies and children living with this complex cardiac condition.
The charity was formed after our first fundraising event in June 2002.
On May 1st 2007 Charitable Status was awarded by the Charity Commission
Sandra Ramsey
Natal Chapman
Ray Tilley
Katie Blabey
Patrick Carbery
I am Charlie Ramsey’s mother and a trustee of her charity. When Charlie was born facing life saving surgery, I wanted to make a difference – to try and help babies and children facing this life changing journey, so I founded the Charlie Ramsey Research Fund and fundraise to help children with the same condition.
- Sandra Ramsey
I have been a trustee from inception, following the original fundraising at the One Stop Shopping Centre and when CRRF gained charitable status. I have continued in this role as well as being a committee member.
- Natal Chapman
I have been an active Trustee from the early days. Supporting the family in their drive to find a cure.
- Ray Tilley
I am a Core Skills Trainer for Costa Coffee operating in the UK & Ireland. I met Sandra who was passionate about raising awareness for CRRF and congenital heart problems in 2006.
After supporting a few fundraising events, I felt very privileged to have been asked to be a committee member in 2010. I feel strongly that awareness will provide more opportunities to raise money for charities like this.
- Katie Blabey
- Patrick Carbery
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